Done!

So, I thought that throughout chemo I would have a lot of profound thoughts I would want to share in my blog. It was not the case. The eight weeks since starting chemo have mostly cycled between feeling sick while trying to figure out how not to feel sick and feeling overwhelmed at school both trying to catch up and trying to get ahead. That is why I did not write.

BUT, now I am DONE! I finished my last cycle of chem on May 13 (Friday the 13th interestingly enough)! Woo! I'll go into what exactly that means in a bit, but first I'll go back a little.

I started chemo on March 28 (it was supposed to be March 21 but my insurance company had other things in mind - I could go on and on, but I will spare you). I have learned that different types of cancer take different types of chemo and different types of chemo are given at different intervals. For me, I received three different chemo drugs (they are called bleomycin, etoposide, and cisplatin if you want to know). On Monday, I received all three over about 5 hours and on Tuesday-Friday I receive two of the drugs and it took 3.5-4 hours. Then I had two weeks of no chemo before starting over again. I had a picc line which is like a long-term IV that I received the infusions through (that thing coming out of my arm in the photo). So for those 3-5 hours I just sat or laid there while the nurses (who were wonderful) fed different things into the picc.

Week 1 - still with hair

For chemo I decided that each day I was going to wear a shirt from a different race that I have done. Sort of as a reminder of what I can do. I took a photo of myself each day for a reminder. You will see that I did lose my hair, but I do have an okay shaped head and did not lose my eyelashes or eyebrows. I don't rock the bald look unless I am home or among friends in their home, but plan to rock the fuzz once it starts coming in.

Week 2 - no hair

The first week of chemo was not too bad at all. Monday-Wednesday I felt good. I spent my time coloring, reading, watching TV, hanging out with my parents (one of them came to every cycle and sat with me and were wonderful!), and thinking, "no problem, I can do this." Then Thursday came around and I started to really feel the effects. For me, it was like feeling slightly car sick all the time while also being exhausted. It got worse through the weekend and then started improving partway through Monday. By the following weekend I felt pretty normal. The following two cycles were similar, just worse each time. The last cycle, I was doing very little during chemo other than sleeping or listening to podcasts/music. It also took longer to feel somewhat normal.

Week 3

Again this fits into the fortunate and yet unfortunate feeling I've had through all this. Chemo was not fun and I felt pretty sick, but I was not as sick as they warned me I might be. I also only had to go through three cycles where most people have at least six. I lost my hair, but have a normalish shaped head and did not lose my eyebrows or lashes. I also had a job that was understanding and allowed me to miss school during chemo weeks as well as other days where I was not feeling well.


So, what's next? Hopefully only good things :) My doctor is very positive and thinks it is a good possibility that I am now cancer free and will stay that way for a long time, if not forever. My next appointment will be in August where they will track a tumor marker (a number that goes up when there is a tumor and not when there is not) and do a general exam to see how things are. I will have these appointments every 3 months for a couple years to make sure I am still cancer free. And, in the meantime, I will be getting my strength back. Do some easy hiking, cycling, etc and hopefully, in not too long, some running. I will be willing my hair to grow back. And I will be enjoying my summer and life to the best of my ability :)

"Just kidding, the choice is not really yours :/ "

After my last post, I had a decision to make: to chemo or not to chemo. After talking to friends and family and finding as much research as I could, I decided not to chemo. In the weeks after that, I was starting to feel better, I was getting out and hiking a little and trying to get my energy back to return to teaching. In my head, this was all behind me (at least for a while) and I was looking forward to getting back to my pre-giant-tumor life. Well, it did not work out that way.

Because my tumor is rare, was large, grew really fast, etc my doctor wanted to present it at something called "tumor board." Tumor board is where a bunch of different cancer doctors get together and discuss cases. I did not know things like this happened, I find it interesting/neat, it is my doctor getting second opinions instead of me having to. Apparently, at tumor board, all the doctors told my doctor that I should really reconsider not doing chemo. I guess they said that since my tumor was so large and it burst, sending cancer cells throughout my abdomen, it would be a mistake to not try and kill any errant cells. They convinced him enough that he called me back in to have another conversation about chemo.

I received a call on March 4 saying "you need to come in so we can revisit chemo" and we made an appointment for the following Tuesday. That gave me a weekend to think about it, stress over it, and plan what I was going to tell him at this appointment. I thought about how I was going to tell him that I still didn't want chemo, I thought about how if I did chemo I would wait until summer, I thought about second opinions. On Tuesday, I went to the appointment feeling good about my stance and when my doctor started talking, it all went out the window.

My doctor decided to use this thing called logic and it defeated my thinking and lack of knowledge. Basically, he said that there is a good chance there are still cancer cells in my body and it is better to kill them now while I am young and healthy rather than letting them latch onto something and grow and possibly come back at a time in my life when I am not so young and health. Hard for me to argue with that thinking.

So, I am not quite at the moving on and getting back to my pre-giant-tumor life, at least not yet, and will be entering the world of chemo. I will be having my first dose in the next two weeks (it depends on when insurance approves the referral). I will be given three different medications. On Monday I get all three and then Tuesday-Friday I get just two of them. After getting a week of infusions I get two weeks to recover before repeating it. Total I will have three weeks of infusions after which (as my doctor put it) I may not have to deal with cancer ever again.

I have had some time to think about and accept that this is the next stage in this "obstacle." It sucks, but I believe I have the support and the strength to get through it. I will be out of school on the weeks of infusions, but will be trying to work on my recovery weeks. My school and my students are being very supportive of my situation [my students tell me they are going to bring in colorful wigs and hats for me to wear when I lose my hair (and yes, I will, most likely, be losing my hair)] and want me to work as often as possible, but understand I may not feel well on some days. This has relieved some of my stress and apprehension (which I have a lot).

Through all of this I, almost daily, go through moments of feeling very unlucky and yet rather fortunate. I had a giant cancerous tumor, but it was confined to one ovary and is a very treatable type; I had to miss enough school to where I lose money every day I am not there, but I had some money saved up and can afford to miss those days; I have to have chemo, but it is only one cycle. I don't usually know what to do with these emotions but I try to embrace both. I allow myself to have mini-pity-parties, but also focus on being fortunate and think forward to when this is (hopefully/probably) just a memory. I am not always good at that; I guess that is just me being human.

So, thanks to everyone who has reached out, hung out, hiked, prayed, sent positive vibes, etc. I appreciate it all and it has really helped me stay positive. Love you all :)

Health Update

The not-so-short summary of my last two weeks:

As of January 31, it was unknown what was growing in my ovary and as of the afternoon of February 1, it was confirmed to be a cancerous tumor, but was also completely removed. So, by the time I knew I had cancer, I did not have it anymore. It is kind of strange and hard to process.

To be more medically specific: I had a granulosa cell ovarian tumor. Which is a rare, but very treatable type of tumor. It only makes up 2% of all ovarian cancers but has an 84-95% survival rate at 10 years. So great news on prognosis, not good news on the amount of research done.  Mine in particular was huge. It measured 30 cm (~11.8 in) at its widest part and weighed 6.8 kg (~15 lbs). This weight also happens to be the minimum weight of bikes in international bike races (Ex: Tour de France). So needless to say I had been uncomfortable before it was removed. And it had grown fast. When I had my CT scan 10 days before surgery it was under 25 cm and a month before I had no idea it was there.

Another interesting fact is that these tumors are most common in overweight, non-white women between the ages of 50 and 54. So, yeah, not me at all...

The surgery was Monday, February 1. I was pretty miserable that day and into Tuesday and Wednesday. Luckily my family was there to support and help me and I had wonderful nurses. By Thursday I was feeling significantly better, Friday they sent me home, and yesterday I had my follow-up appointment.

The follow-up was mostly really great news. Everything (besides the tumor) that the doctor had biopsied came back negative (no cancer). This is wonderful and such a relief! It means I get to keep my other ovary, my uterus and all my other organs that could have contained cancerous cells (but didn't!). The part that does not fit into the mostly good news is that part of the tumor had ruptured. It was a small part and had happened recently enough to not have spread any cancer (thus the negative results). But because it ruptured it puts me at a stage 1c cancer. For stage 1a and 1b the recommendation is to just have regular follow-up appointments to make sure the cancer has not returned. For stage 2 (one stage higher than 1c) the recommendation is chemo. For stage 1c the recommendation is to "consider" chemo. So basically that means I get to decide. It is nice to have some control over my treatment, but really, how I am to make that decision??

My doctor (who I really like and trust) gave me the most recent article published on granulosa tumors and talked me through both options (I was surprised and thankful for all the time he gave me) but said the decision needs to be mine. I have been spending the past day reading anything I can find on the tumors (there is not a lot as less common = less research) as well as the side effects of the chemo. Basically what I have concluded is the chemo sucks but works, and it just may not be necessary for me. Which is about what the doc told me in the first place.

That may be way more information than you wanted to know, but it is helpful to my processing to write it down. Now I have until Monday to make a decision about the chemo. At that point I will talk to the doctor and know more about next steps. Overall, it is really good news and my prognosis is really good (regardless of what I decide to do). So, while this whole thing has been quite shitty, I am thankful that it was not more so.

Thanks everyone for your support, vibes, prayers, texts, cards, flowers, etc. I appreciate it all and the love makes everything easier. Love you all :)

A new health challenge

Hi friends,

So it has been over two years since I have written anything here, but am back for at least a one time post. I have some information I would like you to know and I don't know a better way to get this information out to everyone, as I have, luckily never had to share such information before. So, sorry for doing it in this semi-impersonal way. 

The short story: I have a large mass on my right ovary that will be removed during my surgery at 9:30am (mtn time) on Monday, February 1st. 

The longer story: I have been having some abdominal discomfort and bloating since mid-December. I finally went to see the doctor two weeks ago and last Friday I had an ultrasound and a CT scan. They showed a large mass that appears to be growing on my right ovary. On Tuesday (January, 26 2016) I met with the gyn-oncologist who has scheduled me for surgery to have the mass removed next Monday. At this point, I do not know if it is cancer because the mass is large enough that it will need to be removed regardless of what it is (there is no point for an initial biopsy). I will know more about what it is on Monday when the mass is removed and analyzed.

So, what does that mean? At this point, it means that I will have a major surgery on Monday. It means I'll be off work for the next 4-6 weeks. It means that I am nervous and uncomfortable. It means that I would love any extra positive thoughts, prayers, love, chants, etc that you have to spare. 

I am all about the truth being out there rather than rumors. I don't mind if people know (a few more positive vibes couldn't hurt) but don't plan on making any facebook announcements. So, if you think someone would like to know, it is okay to tell them. I have sent this to you because I would want to know if you were in this situation and therefore believe the opposite is also true. Feel free to ask questions if you have any, I will hopefully be able to send out an update on Tuesday after the surgery.

I love you all and hope you are doing well.